Caring 4 Codey

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Codey has been battling stage 4 Neuroblastoma off and on since March 2006. His most recent relapse was December 2018 when doctors had biopsied nodes In his neck they found that the cancer had come back and spread to his chest. Since Codey has been battling for so long and this is his second relapse to the same site, Codeys oncologist felt it’s in Codeys best interest to only radiate the site of relapse. Due to his history of many relapses, treatments and chemo we are trying to preserve his organs and safely radiate the tumor bed with a less invasive radiation called proton. This radiation is much safer due to using proton beams instead of X Ray. Codeys been treated by the Neuroblastoma team at Memorial Sloan Kettering since 2006. His radiation oncologist works between Sloan Kettering and Procure Radiation therapy in NJ which is only an hour or so away from Sloan. Sloan sends their patients to Procure to have this specialized proton radiation.

Codeys mother has excellent in network insurance but she pays hefty premiums to ease the burden of in network cost. Although Sloan is considered an in network provider, Procure is not. In order for Codey to have this therapy under the directon and mapping of his primary radiation oncologist it will cost the family close to $11,000. The therapy it’s self cost $200,000. His mothers out of pocket cost was $2,000 for his radiation simulation which was done in December 2018 in order to start treatments in January 2019. It’s unfortunate it fell in two calendar years because now they are responsible for a new out of pocket cost for 2019 of $7,000.

To make matters worse we only have until January 10th to come up with the $7,000. Procure offers financial assistance for a family of two (mom and Codey) their income cannot be more than $35,000. They exceed the federal poverty guideline. While receiving these radiation treatments they will need to stay locally to the treatment center. Unfortunately, this means additional cost as well as food and fuel. He will be receiving 20 radiation treatments extending from 2-3 weeks. During this time he will also be returning to Sloan Kettering for follow up surgical and oncology appointments.

We thank you from the bottom of our hearts for all of your love, support and prayers.

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